Day 4 (November 21, 2013)
The hard part was over, now what. Baby Z had gone through open heart surgery and survived. Now we wait. Wait to heal and wait to hear if we would be home for Thanksgiving, wait on everything. We got a sleep room our first night in the PCCU, pediatric cardiac critical care unit. These are slim pickin’ and hard to get but we were so thankful for one. It had a queen size bed with a foam mattress and not much else. You had to check in at 9:00 pm and be out by 10:00 am. That room was meant for sleeping only and that is what we did. We awoke at 6:00 am and Mr. Z ran down the hall to check on Baby Z. He wanted to get there before to nurse change to get an update on how he did in the night and to also meet the day nurse.
Baby Z was still much sedated and did not move or open his eyes until late that night. He was still on all the medicines but he was very swollen due to all the fluids he received to increase his blood pressure from the night before. They added Lasix to get some of the fluid out of his little body but he still was not peeing enough, so they upped it more. This seemed to help and we were producing lots of urine by the afternoon. The scariest part as this time was the ventilator. I hated watching a machine breath for my baby. The night nurse advised me that they were going to start trying to wean him off of the vent and run some tests during the night. They would take him off for an hour and back on for 3 hours and continue until they thought he was able to come completely off. They draw blood at these times to see how our blood gases were doing and if he passed 3 blood draws he could come off. I was super excited to hear this news. By the time we went to bed we got the news he had passes his first test.
Day 5 (November 22, 2013)
Thankfully we were once again able to get a sleep room for the night. We awoke at 6:00 am and rushed down the hall to the PCCU. We walk into his room and see our baby with no breathing tube. He was extubated right before we arrived, we missed it 😦 He now had a nasal cannula that was giving him small amounts of oxygen.
We had big changes this day. They decided today they would let him try to eat for the first time ever. He had a speech therapist come to evaluate him and she thought he would be able to give it a try. We started with 5 mls of breast milk and he loved it! They also removed some of his IV medicines. It was such a nice feeling to start seeing things less stuff on him. That night we did not get a sleep room. We stayed in his room which had a fold out bed big enough for one person to sleep and a rocking chair. He did get one of the newer rooms that had its own private bathroom, that was nice plus. It was not comfortable by any means but we both were able to snuggle tightly on that bed and slept okay during the night.
I loved seeing less of theses. We are down to only 2 rows! There were 4.
Day 6 (November 23, 2013)
Not much happened this day. Mostly just waiting to see how he did without most of his IV medicines. They were able to stop all the medicines, even his heart meds, and waited to see how he would do. They also removed his Art line (a thin catheter inserted into an artery) this had to be done while a heart surgeon was on duty in case some happened since this line ran straight to his heart. He was now on oral calcium, Pepcid, and Lasix and doing great! They were happy with his urine output and was able to get his urinary catheter removed and got to wear a diaper.
We once again slept in his room with him but we liked it much better because we did not worry as much as before when we were in the sleep rooms. It was not comfortable but we did not care. He had a flat screen TV and Mr Z, being an engineer, rigged it so we could control it via cellphone, so we had some entertainment. We still had our family coming and going the whole time so there was not time to get bored. Once everyone left, visiting hours were 9:00 -9:00, we relaxed and tried to sleep. Nurses came and went all night long but they really tried not to disturb you. We LOVED the nurses in the PCCU!
This is his room in the PCCU
This is the view from the back were we stayed.
Day 7 (November 24, 2013)
Big day today! We were moving up to the 7th floor and mommy finally got to hold Baby Z for the first time since his surgery! What a relief! Baby Z would be moving to his own room. There we were excepted to do most of his care,unlike the PCCU, there was 1 nurse to 4 babies on the 7th floor. In the PCCU he had his own nurse, just for him. They rolled his big boy crib in the room were getting ready for the big move. We were so happy. Everything was happening so fast. The doctors did their rounds, they released him, we packed all our stuff, held Baby Z, the nurse packed Baby Z things and off we went. We were in his room before lunch time.